Homestar Runner Wiki Forum

A companion to the Homestar Runner Wiki
It is currently Mon Sep 18, 2023 7:11 am

All times are UTC




Forum locked This topic is locked, you cannot edit posts or make further replies.  [ 28 posts ] 
Author Message
 Post subject: The "Ashley Treatment"
PostPosted: Sat Jan 13, 2007 11:41 pm 
Offline
Pizza Pizza
User avatar

Joined: Tue Jun 22, 2004 4:05 pm
Posts: 10451
Location: probably the penalty box
I was watching Larry King very early this morning and I was quite intrigued to discover that he wears jeans (not that you ever see his legs) with his shirt, suspenders, and tie), but that's not what I remember the most about the episode.

There were some doctors on there discussing something called the "Ashley Treatment" of a mentally handicapped girl. Knowing nothing of medical stuff (other than procedures I've had and ones my dad's had recently), I like to find out all I can, so I started paying attention.

It turns out that the parents of a severely mentally handicapped, 9 year old girl have, in an effort to "make her more comfortable", used several radical surgeries and treatments to stunt her growth. While her parents and their supporters have stated time and time again that they are doing what is in her best interest, several disability advocates have argued that it is purely for the convenience of her parents, since it makes her easier to move around and such..

Personally, I find it kind of scary to think that something like this could/would be done under the guise of increasing the quality of one's life. To me, it seems a bit like amputating the arms and legs of a quadriplegic, because, hey, they're not using them.

Linkage:
Her Parents' Site
CNN
The BBC

_________________
If you can't fix it with a hammer, you have an electrical problem.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jan 13, 2007 11:47 pm 
Offline
User avatar

Joined: Tue Apr 04, 2006 7:25 pm
Posts: 1930
Location: Inside of a shirt,underwear,pants,shoes and under a hat
I think that is terrible. It is pathetic what measures a parent would go through to make their life easier, at the expense of their child.

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jan 13, 2007 11:56 pm 
Offline
User avatar

Joined: Sun Mar 20, 2005 1:09 am
Posts: 8987
Location: He remembered Socks!
Well, She has, like, Mental Retardation, cerible palsy, and other things i cant remember... Doesn't seem like she should have lived longer than she already has.

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 1:05 am 
Offline
User avatar

Joined: Sun Sep 04, 2005 3:10 pm
Posts: 3999
Location: Sims 2
Letter on Blog wrote:
I felt compelled to write to disagree with ethicist Caplan's (U of Pennyslvania) assessment that "Ashley's Treatment" was not for direct patient benefit. Your blog and others' messages make perfectly clear that each decision was made in Ashley's best interest, and for her safety and comfort. I have seen many disabled teen-aged patients in the ED whose care has had to be transferred out of loving homes into institutional facilities, much to the patient's detriment. You know the stories -- falls, bed sores, wound infections, STDs, heart-breaking pregnancies and more. You would have had my complete support had I served on the ethics committee that reviewed Ashley's case. By "pioneering" and publicizing these options, I am certain that many others will benefit from your bravery!


In short, I agree that the parents are doing the right thing. You don't know the pain of monthly cramps unless you experience it, and a 3 month old can't understand why that happens, for instance. They stunted her growth so she stays small. This means that she can have the best comfort possible. She does look relaxed in photos, unlike others who are stiffened. They're doing this so she can stay at home, and that is the most loving thing a parent can do. If anything institutionalizing is the most convenient way for them to solve this problem. But they're willing to try anything for their child to grow up (seriously, no pun intended) the best way possible.

Go ahead, flame away and nitpick on smallest details. ;)

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 7:44 am 
Offline

Joined: Sat Dec 18, 2004 1:07 am
Posts: 3370
Location: San Diego Zoo
I agree with Sree and bwave on this one. That's just wrong. I can't believe parents would do that to a child.

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 7:51 am 
Offline
User avatar

Joined: Sun Mar 20, 2005 1:09 am
Posts: 8987
Location: He remembered Socks!
iKipapa wrote:
I agree with Sree and bwave on this one. That's just wrong. I can't believe parents would do that to a child.

Well, would you rather deal with her getting hurt because she's too big? or what about when she has her first Period, How would you feel then?

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 8:00 am 
Offline

Joined: Sat Dec 18, 2004 1:07 am
Posts: 3370
Location: San Diego Zoo
Choc-o-Lardiac Arrest wrote:
iKipapa wrote:
I agree with Sree and bwave on this one. That's just wrong. I can't believe parents would do that to a child.

Well, would you rather deal with her getting hurt because she's too big? or what about when she has her first Period, How would you feel then?

I guess you have a point there. I'm gonna have to think about this one.

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 8:32 am 
Offline
User avatar

Joined: Tue Jun 20, 2006 4:36 am
Posts: 571
Location: Hangin' with the cool kids. Am I cool yet?
I think it's fine if it makes it more convenient for the parents. If it's easier for them to help her, then she'll be more comfortable. They probably go through so much effort to make her more comfortable. I think it benefits her as well as them. As long as it's not making her die any faster, then it's fine.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 3:24 pm 
Offline
User avatar

Joined: Wed Sep 08, 2004 1:33 am
Posts: 14288
Location: Wouldn't you like to know?
You know, I'm reading opinions on both sides, and each one is making a valid point. Honestly, I don't know what to think in regards to this.

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 6:45 pm 
Offline
Pizza Pizza
User avatar

Joined: Tue Jun 22, 2004 4:05 pm
Posts: 10451
Location: probably the penalty box
The problem I have is that I'm very uncomfortable with the precedent this sets. "Hey, that kid's paralyzed, let's cut off his legs." doesn't sound too far off. Also, I'm a little put off by the attitude on her parents' blog. They write as if there are no moral questions raised by this and seem to be of the opinion that anyone who thinks so is some sort of bigot.

I grew up with a guy that works with the mentally challenged. In his mind this is a big shot to the rights of the mentally challenged, although he concedes that, in this case, she's probably never going to be able to make decisions for herself.

_________________
If you can't fix it with a hammer, you have an electrical problem.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 7:23 pm 
Offline
User avatar

Joined: Mon May 10, 2004 5:21 pm
Posts: 15581
Location: Hey! I'm looking for some kind of trangly thing!
So what happens when you are 80 years old and in a wheelchair, and Alzheimer's has begun to confound your thinking? Are we going to start subjecting the elderly to "procedures" to make them easier to deal with?

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 14, 2007 10:33 pm 
Offline
User avatar

Joined: Wed Jul 27, 2005 10:46 pm
Posts: 993
Location: In the Palace of No Wai, sipping PWN JOO Chai
I'll just say at this point that the parents' argument isn't about making life easier for the carer. It's about ensuring Ashley does not develop health problems associated with a larger weight, and has more personal contact with her carers instead of being moved around in impersonal pullies and lifts. Rightly or wrongly.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jan 15, 2007 2:24 am 
Offline
User avatar

Joined: Sun Mar 20, 2005 1:09 am
Posts: 8987
Location: He remembered Socks!
Didymus wrote:
So what happens when you are 80 years old and in a wheelchair, and Alzheimer's has begun to confound your thinking? Are we going to start subjecting the elderly to "procedures" to make them easier to deal with?

Yes, its called Florida.

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jan 15, 2007 4:09 am 
Offline

Joined: Tue Mar 29, 2005 2:06 am
Posts: 1809
Location: lol.
Choc-o-Lardiac Arrest wrote:
Didymus wrote:
So what happens when you are 80 years old and in a wheelchair, and Alzheimer's has begun to confound your thinking? Are we going to start subjecting the elderly to "procedures" to make them easier to deal with?

Yes, its called Florida.


Image


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 16, 2007 12:05 am 
Offline
User avatar

Joined: Wed Jul 27, 2005 10:46 pm
Posts: 993
Location: In the Palace of No Wai, sipping PWN JOO Chai
Whoa - that cat looks exactly like an old school principal of mine. Freak-eeeeeee.

Anyway........ Tizzle Teh Pizzle.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 16, 2007 12:59 am 
Offline
User avatar

Joined: Tue Sep 26, 2006 6:53 am
Posts: 2217
Location: Australia
Um. I agree with ramrod.

But my initial reaction was disgust. I qualify for mental disability. Barely.

_________________
"Explain to me how drowning them would not ruin their date."


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 19, 2007 1:07 am 
Offline
User avatar

Joined: Mon May 10, 2004 10:28 pm
Posts: 4675
Hmm.

So, from my understanding they stop her growth [for life?] to keep her from hurting herself?

I don't know about you, but I think it would be easier to hurt yourself if you are the size of a child.

_________________
Image
Image


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 19, 2007 4:04 am 
Offline
User avatar

Joined: Wed Sep 08, 2004 1:33 am
Posts: 14288
Location: Wouldn't you like to know?
extremejon09 wrote:
Hmm.

So, from my understanding they stop her growth [for life?] to keep her from hurting herself?

I don't know about you, but I think it would be easier to hurt yourself if you are the size of a child.
Well, the thing is, she has the mental capacity of a toddler. What is going to happen when she reached puberty? How do you explain that to her? That's what the proponents of this procedure are saying.

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 21, 2007 1:23 pm 
Offline
User avatar

Joined: Wed Jul 27, 2005 10:46 pm
Posts: 993
Location: In the Palace of No Wai, sipping PWN JOO Chai
extremejon09 wrote:
Hmm.

So, from my understanding they stop her growth [for life?] to keep her from hurting herself?

I don't know about you, but I think it would be easier to hurt yourself if you are the size of a child.


No, not really. Ashley is pretty much incapable of movement, so that's not an issue. It's about preventing general health problems and discomfort to her in general. It's all in the blog.

ramrod wrote:
Well, the thing is, she has the mental capacity of a toddler. What is going to happen when she reached puberty? How do you explain that to her? That's what the proponents of this procedure are saying.


Actually, she started going through puberty at the age of six, and her doctors are trying to accelerate it with estrogen shots.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 21, 2007 11:13 pm 
Offline
User avatar

Joined: Sun Mar 20, 2005 1:09 am
Posts: 8987
Location: He remembered Socks!
What's Her Face wrote:
Actually, she started going through puberty at the age of six, and her doctors are trying to accelerate it with estrogen shots.

So then she's going to look like a six-year-old with a sixteen-year-olds..."features"?

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Sun Jan 21, 2007 11:43 pm 
Offline
User avatar

Joined: Wed Jul 27, 2005 10:46 pm
Posts: 993
Location: In the Palace of No Wai, sipping PWN JOO Chai
Uh, no. Her "features" have been surgically removed.

Props on the Hugh Laurie avi/sig combo, btw.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jan 22, 2007 9:07 am 
Offline
User avatar

Joined: Fri Feb 10, 2006 7:36 am
Posts: 1423
Location: Hot-Land
Well, I think it's fine. What exactly are they taking away from the kid that makes it bad? I mean... I just think it's more practical to have a child's body, rather than an adult's body, in that condition. I'd have wanted it.
Quote:
You don't know the pain of monthly cramps unless you experience it, and a 3 month old can't understand why that happens, for instance.

Exactly. I feel like her parents are doing her a favour. She doesn't need the pain of having an adult body.

_________________
NOT A SIGNATURE!


Top
 Profile  
 
 Post subject:
PostPosted: Wed Jan 24, 2007 9:49 pm 
Offline
User avatar

Joined: Thu Jun 10, 2004 6:52 pm
Posts: 1057
Location: Ever changing...
Wow. What a thread for me to come back to. I have mixed emotions about this case. At first, I did feel sorry for Ashley's parents, and like several of you girls, I took note of the fact that Ashley won't ever have to experience the pains of puberty. However. I'd like to point out some flaws in arugments people have made:

George Dvorsky as quoted on the BBC website wrote:
If the concern has something to do with the girl's dignity being violated, then I have to protest by arguing that the girl lacks the cognitive capacity to experience any sense of indignity. The oestrogen [sic] treatment is not what is grotesque here. Rather, it is the prospect of having a full-grown and fertile woman endowed with the mind of a baby.


That word "grotesque" REALLY offends me. I'd like to go into a feminist rant here, but I'll try to avoid it. In my opinion, what is TRULY grotesque is that this girl's rights - and her own body - are being completely violated.

Ashley's Parents' site wrote:
Ashley is alert and aware of her environment; she startles easily. She constantly moves her arms and kicks her legs. Sometimes she seems to be watching TV intently. She loves music and often gets in celebration mode of vocalizing, kicking, and choreographing/conducting with her hands when she really likes a song (Andrea Boccelli is her favorite – we call him her boyfriend).


This girl may not have the cognitive functions of most kids her age, but her mind IS working - she can recognize her family members, she likes music (and can recognize a favourite). I'm with Sree:

{quote="StrongRad"]The problem I have is that I'm very uncomfortable with the precedent this sets. "Hey, that kid's paralyzed, let's cut off his legs." doesn't sound too far off.[/quote]

I love that all these people are saying, "Well, she's not cognisent enough to miss her breasts and uterus, so what does it matter?" Well if that's the case, then she's not cognisent enough to CARE that she has them in the first place, so why not leave them be?

And then there was this little "pearl of wisdom" contributed by someone on CNN.com that really made me angry:

An idiot on Cnn.com wrote:
No one objects to surgery to remove a cancer or hormone treatments to treat a variety of ailments. No one objects to pain medication for palliative care. Why would anyone object to surgery or hormones to improve the quality of life and care for a severely mentally disabled child?


BECAUSE HER BREASTS AND UTERUS WERE WORKING, MORON! THEY WEREN'T DISEASED WITH CANCER, OR CAUSING HER PAIN.

Sorry for the yelling. I suppose I feel so passionately about this issue because of my own relationship with a disabled little girl. When I was in junior high, my sister and I used to baby sit for a little girl with moderately-severe cerebral palsy. Kelly couldn't walk - still can't - has trouble with motor skills, and speaks very slowly and is difficult to understand if you don't know her well. She lives with her grandparents, primarily, though her mom and step-dad are very, very active in her life. There are lots of things Kelly can't and never will do. And her grandparents certainly would have an easier time moving her around if she was smaller (she's 16 now...I can't believe it...she's always been like a little sister to me), but knowing them, I'm sure they'd be appalled at the "Ashley Treatment". But her mind was amazing...when she was a kid, she was more imaginative and intelligent than kids several years older than she. And it always infuriated me when people treated her otherwise. Now I live in the States and she still lives in Saskatchewan, and she's a beautiful, bright, happy teenager. I talk to her via IM every so often (we usually have voice chats, as she can't type very quickly), and she asks me for advice about boys, and makes me laugh when she says she needs to get out of our old hometown. She also recently went to Ottawa (Canadian capital) as an advocate for disabled persons.

I realize Ashley's situation is much more dire than Kelly's. But I know another little girl who has a similar condition - Emily. I think Emily was officially diagnosed with severe cerebral palsy - she can't walk, talk, hold her self up, etc., etc - very similar symptoms to Ashley. But knowing Emily's parents and grandparents (family friends), I'm sure they would be horrified at this treatment.

Sorry Ashley's parents - I don't see your decision as being in her best interest, but rather in yours. Hire an in-home nurse to help you out, if you want to improve Ashley's quality of life and help your selfish selves out too.

Skee out.

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Wed Jan 24, 2007 10:42 pm 
Offline
User avatar

Joined: Sun Mar 20, 2005 1:09 am
Posts: 8987
Location: He remembered Socks!
StrongCanada wrote:
BECAUSE HER BREASTS AND UTERUS WERE WORKING, MORON! THEY WEREN'T DISEASED WITH CANCER, OR CAUSING HER PAIN.

Yes, but try and explain why they're is blood coming from her and she's not hurt when she turns 13. She's not going to understand, and every month when it happens, she is going to think she's dying because she is bleeding.

She has the mind of a child, she cant move, and breasts would impair how she is handled and cared for.

I do believe it is justified because of the immense strain that would befall her parents. They take care of her, they love her, what they are doing is best for her.

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Wed Jan 24, 2007 11:30 pm 
Offline
User avatar

Joined: Mon May 10, 2004 5:21 pm
Posts: 15581
Location: Hey! I'm looking for some kind of trangly thing!
Choco, your argument there is wrong on so many levels. Do you honestly think she is the first mentally-handicapped girl who will have to endure menses, and might have some difficulty understanding what's happening to her? As Amy points out, it's not that this girl's reasoning capacity is completely gone.

Furthermore, as someone who worked in a nursing home - and with many Alzheimer's patients - I can honestly say that "convenience of the caregiver" is not a valid argument for violating someone's rights. If it endangered her life, that would be one thing, but this is different.

_________________
ImageImage


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 26, 2007 5:52 pm 
Offline
User avatar

Joined: Fri Aug 13, 2004 10:51 pm
Posts: 2378
Location: In the Aeroplane over the Sea
As long as the parent's intentions are good, and she's not being hurt in any way, I really don't see much wrong with it...

_________________
Sister, now that we're grieving
Our fingers will falter
Our lungs will be leaking
All over each other and without even speaking
We'll know that it's over and smile and go greeting
Whatever comes next


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 26, 2007 9:18 pm 
Offline
User avatar

Joined: Wed Apr 27, 2005 12:58 am
Posts: 3489
Location: Anywhere but here.
While I'm not really sure it's the right thing to do, her parents do seem to have her best interests at heart. I'm not especially educated on the matter, though.

Also, am I the only one who thinks Pillow Angels would be a pretty good band name? *shot*

_________________
Image


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 26, 2007 10:03 pm 
Offline
Pizza Pizza
User avatar

Joined: Tue Jun 22, 2004 4:05 pm
Posts: 10451
Location: probably the penalty box
It's the "Pillow Angle" name they've attached to Ashley that makes me think they're treating her more like a pet or novelty than daughter. Don't get me wrong, I don't think they should call her some sort of demeaning nickname, but you know, she's their daughter. Shouldn't they say "She's our daughter" and not "She's our pillow angel".

It's like they're de-humanizing her.

_________________
If you can't fix it with a hammer, you have an electrical problem.


Top
 Profile  
 
Display posts from previous:  Sort by  
Forum locked This topic is locked, you cannot edit posts or make further replies.  [ 28 posts ] 

All times are UTC


Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  
cron
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group